I’ve not documented anything on this blog in a while so – here’s a health update:
At only 23 years old, I feel like I must be nearing 80, and my quality of life compared to most young adults my age is downright nonexistent.
There’s a massive backstory that comes along with my health, both physical and mental which you can read about in the old ass posts on this site – but for now we can talk about what’s happening in this present moment.
Upon moving to Pennsylvania, I was upset to be leaving a doctor that I had really liked, but I eventually found a new GP that really seemed to take her time with me.
After addressing all the standard run of the mill stuff (the spastic bowel, the anxiety and panic) I found it time to readdress the chronic widespread pain I’ve been experiencing for some time.
The first time I spoke about this pain to a doctor was about 4 years ago – I had excruciating shooting pains in my shoulders that often happened whilst I slept, as well as a consistent ache in my hips and down my legs that wouldn’t let up and would wake me up. My doctor at that time had run all sorts of tests – those that would rule out rheumatoid arthritis, lupus, lymes disease, etc. All of the tests came back clear, and seeing that I was 19 years old, the response was, “I’m not sure what’s up with you so uh -stretch, eat well, get rest, let’s up your anti-depressant”.
At 19 years old, 2 years into finally having a diagnosis for the stomach issues that had ruled my childhood, I wasn’t about to push or press my doctor to look for the needle in the hay stack, and I sort of just accepted the physical pain I felt.
Fast forward to my early 20s, living in PA, I was VERY accustomed to feeling constantly tired, achy, sore, and relatively worn down regardless of what I was doing, where I was, what I ate, what I drank, or how much sleep I’d gotten. After speaking out about this to people that actually cared, I was told that what I was feeling simply was NOT normal, and that I shouldn’t have to suffer. After moving to a new apartment in April, my symptoms got SO severe I really couldn’t take it anymore, and I spoke with my new PA doctor and told her what was going on. She decided to run a few tests and get the blood work done on – she searched for things such as: rheumatoid arthritis, lupus, lymes disease, etc. Of course, these came back negative. My inflammatory panel was high, and well, no shit – everything hurts, something’s gotta be inflamed – BUT, is it the GI tract from my GI conditions? Is it located in my joints? Do we care? Did this tell us anything? Probably, probably, not really, and nope.
I was already taking an antidepressant, and so my doctor decided maybe we try a different one – one that was also used to treat chronic nerve pain. Me being, well uncomfortable, in pain, and really just wanting to feel better, said “OK let’s do it” and I gave it the old college try.
The new meds didn’t do much of anything for my pain, so we upped the dose a few times. No results – so we tried a different one which gave me, little to no results again. Now we’re on a third anti-depressant used to treat chronic pain – This one has done pretty good work for my mood but, again, nothing for my pain. Amidst these acrobatics, I’d developed some intense bladder pain and urinary discomfort, and unexplained bouts of vertigo that had gotten so bad I’ve had to leave work. I called my doctor’s office to try and get in there as quickly as possible, and instead of seeing my regular GP, I had an appointment set up the nurse practitioner in the office. The nurse practitioner was very good to me – very sympathetic, and absolutely willing to help me sort out whatever I needed. After a few blood tests, urine analyses, and an ultrasound, I got a diagnosis of interstitial cystitis. For the vertigo, she recommended vestibular therapy and gave me a medication to take to manage vertigo and the nausea that’s come with it.
The past few months have been really tough on me. I’ve recently reached out to my primary care doctor again and told her I’ve not been feeling better at all. She suggested I take a medication called Sevella, which is used to treat fibromyalgia symptoms. She’s not ready to give me a diagnosis, but we’re going to try a new drug in hopes I can get some pain and fatigue relief.
I just want more good days than bad days.